It is great when contact is made with other SD challenged people from around the world and it is even better when you receive a comment from family of friends to say that your voice is sounding better. I was just on the phone to my son and he said my voice is sounding stronger than the other day; little comments like that are so important because I was thinking that I was not making progress and my voice was the same as yesterday!
What does not help is when a loved one looks at you as if you are a double headed monster when you are trying to make yourself heard and understood in public, where it is generally a lot more difficult to speak. This happened today and it was a look I was familiar with from years ago prior to having Botox, the look I would receive from my partner (who is not a patient man) was of being fed up with having to listen to my poor voice, it is very condescending. I am sure that it is just as hard for others with good voices to live with those who have Spasmodic Dyshonia. We are all challenged!
Friday, December 28, 2007
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